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Domain Informations
Administrator
  • name : HINET Network-Adm
  • address : CHTD, Chunghwa Telecom Co., Ltd.,No. 21, Sec. 21, Hsin-Yi Rd.,,Taipei Taiwan 100
  • country : TW
  • phone : +886 2 2322 3495,+886 2 2322 3442,+886 2 2344 3007
  • fax : +886 2 2344 2513,+886 2 2395 5671
  • email : [email protected]
  • handle : HN27-AP
  • remarks : same as TWNIC nic-handle HN184-TW
  • mnt-by : MAINT-TW-TWNIC
  • last-modified : 2011-08-22T06:04:01Z
  • source : APNIC
Technical support
  • name : HINET Network-Adm
  • address : CHTD, Chunghwa Telecom Co., Ltd.,No. 21, Sec. 21, Hsin-Yi Rd.,,Taipei Taiwan 100
  • country : TW
  • phone : +886 2 2322 3495,+886 2 2322 3442,+886 2 2344 3007
  • fax : +886 2 2344 2513,+886 2 2395 5671
  • email : [email protected]
  • handle : HN27-AP
  • remarks : same as TWNIC nic-handle HN184-TW
  • mnt-by : MAINT-TW-TWNIC
  • last-modified : 2011-08-22T06:04:01Z
  • source : APNIC
Network
  • inetnum : 59.124.0.0 - 59.127.255.255
  • name : HINET-NET
  • country : TW
  • abuse-c : AT939-AP
  • status : ALLOCATED PORTABLE
  • mnt-by : MAINT-TW-TWNIC
  • mnt-irt : IRT-TWNIC-AP
  • last-modified : 2021-11-04T00:50:11Z
  • source : APNIC
Owner
  • organization : Data Communication Business Group,
  • address : Chunghwa Telecom Co.,Ltd.,No.21, Sec.1, Xinyi Rd., Taipei City,10048, Taiwan
Host Informations
Host namewebmail.tfrd.org.tw
IP address59.124.212.50
LocationTaipei Taiwan
Latitude25.0478
Longitude121.5318
TimezoneAsia/Taipei
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 › IIS, NFS, or listener RFS remote_file_sharing: 1025
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Semrush Domain Overview
Domain Backlinks 58.7K
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財團法人罕見疾病基金會

【2022/10/14】【病友活動】2022年聯合罕見疾病病友聯誼活動歡迎參加! 【2022/10/12】【公益合作】2022萊爾富捐零錢 『麟洋』攜手罕病出擊~一塊照亮罕見希望 【2022/10/11】【病 …

Tfrd.org.tw

DA: 15 PA: 10 MOZ Rank: 25

財團法人罕見疾病基金會

而國內罹患罕見疾病之人數,依照國民健康署的罕見疾病通報個案,為19,225人,基金會服務個案數則為17,999人 (包含直接服務8,446人與間接服務51個病友團體之罕病病友)。. 另外,公告之 …

Tfrd.org.tw

DA: 15 PA: 12 MOZ Rank: 28

首頁 | 罕見疾病一點通

最新消息. 「RVB-001」通過美國食藥署小兒罕藥認定,認應症為Netherton症候群. 2022/08/04. 臺大醫院開發AADC缺乏症腦部基因治療 獲歐盟核准上市記者會. 2022/08/03. 國健署預告新增4 …

Web.tfrd.org.tw

DA: 15 PA: 11 MOZ Rank: 28

tfri.gov.tw

驗證碼難以辨識時,可點選「驗證碼圖片」重新產生另一組驗證碼。

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財團法人罕見疾病基金會

疾病類別: 17. 疾病名稱: Prader-Willi氏症候群,小胖威利 ( Prader-Willi Syndrome, PWS ) 現階段政府公告之罕見疾病: 有. 是否已發行該疾病之宣導單張: 有. ICD-9- CM診斷代 …

Tfrd.org.tw

DA: 15 PA: 24 MOZ Rank: 43

首頁 | 罕見疾病一點通

隱私及資訊安全政策: 適用範圍:以下隱私及資訊安全政策適用於您在罕見遺傳疾病一點通網站 (以下簡稱本站) 活動時,所涉及的個人資料蒐集、運用與保護,但不適用於與本站功能連結之 …

Web.tfrd.org.tw

DA: 15 PA: 14 MOZ Rank: 34

Tfrd.org.tw-Health Site

Tfrd.org.tw Tfrd.org.tw is a Health website . Site is running on IP address 59.124.212.50, host name webmail.tfrd.org.tw (Taipei Taiwan ) ping response time 2ms Excellent ping. Current …

Cig.lettersandscience.net

DA: 25 PA: 13 MOZ Rank: 44

罕見疾病一點通-藥物資料庫

隱私及資訊安全政策: 適用範圍:以下隱私及資訊安全政策適用於您在罕見遺傳疾病一點通網站 (以下簡稱本站) 活動時,所涉及的個人資料蒐集、運用與保護,但不適用於與本站功能連結之 …

Web.tfrd.org.tw

DA: 15 PA: 18 MOZ Rank: 40

tfrd.org.tw 403 - 禁止: 拒絕存取。

Tfrd.org.tw traffic volume is 839 unique daily visitors and their 1,091 pageviews. The web value rate of tfrd.org.tw is 9,373 USD. Each visitor makes around 1.39 page views on average. By …

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DA: 34 PA: 18 MOZ Rank: 60

罕見疾病一點通-門診案例

國立臺灣大學醫學院附設醫院. 尼曼匹克症C型 (Niemann-Pick Disease Type C, NPC) 撰文者:陳怡禎(台大分醫所遺傳諮詢組研究生) 上傳日期:2013年 粒線體DNA疾病 (Mitochondria DNA …

Web.tfrd.org.tw

DA: 15 PA: 21 MOZ Rank: 45

Taiwan Foundation for Rare Disorders

Address 6F., No.20, Changchun Rd. Taipei City, 104 Taiwan Phone 225210717 Fax 225673560 800 Number 225673560 Email Address [email protected] Website http://www.tfrd.org.tw …

Rarediseases.org

DA: 16 PA: 50 MOZ Rank: 78

罕見疾病一點通-好站連結

罕見疾病一點通-好站連結. 好站連結. 台大醫院基因醫學部. 財團法人罕見疾病基金會. Little People of America. 聯絡我們,諮詢請直接寄信至 [email protected] 醫療機構網際網路資訊管理 …

Web.tfrd.org.tw

DA: 15 PA: 19 MOZ Rank: 45

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