Ernbond.eu

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Email address with ernbond.eu
Found 1 emails of this domain
1. [email protected]


Host Informations
Host namehostingssd22-244.netsons.net
IP address89.40.172.244
LocationPescara Italy
Latitude42.4584
Longitude14.2028
TimezoneEurope/Rome
Postal65126
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Endo-ERN | European Reference Network on Rare …

The European Reference Network on rare endocrine conditions (Endo-ERN) aims to improve access to high-quality healthcare for patients with hormonal disorders. Endocrine conditions are often complex and require a long period of care due to chronic disease without being life-threatening. Therefore, endocrine care requires equal distribution of ...

Endo-ern.eu

DA: 11 PA: 11 MOZ Rank: 12

ERN BOND - European Reference Network on Rare Bone Diseases

ERN BOND - European Reference Network on Rare Bone Diseases. 548 followers. 4w. Report this post. The 49th edition of the ECTS' congress takes place in …

Linkedin.com

DA: 16 PA: 44 MOZ Rank: 61

ERN NAME FUNCTIONAL MAILBOX BOND CRANIO ENDO …

ERN NAME FUNCTIONAL MAILBOX 1 BOND [email protected] 2 CRANIO [email protected] 3 ENDO [email protected] 4 EpiCARE [email protected] 5 ERKNet [email protected] 6 EYE [email protected] 7 ERNICA [email protected] 8 LUNG [email protected] 9 RND [email protected] 10 SKIN [email protected] 11 EURACAN …

Ec.europa.eu

DA: 12 PA: 50 MOZ Rank: 75

ERN-BOND - OIFE - Osteogenesis Imperfecta Federation Europe

ERN-BOND has selected osteogenesis imperfecta, as an area of focus, to understand the common challenges in diagnosing rare bone diseases and to provide recommendations for improving referrals, reducing diagnostic errors and shortening diagnostic delays. In February 2018 a White Paper on OI was presented at the EU Commission to present the ...

Oife.org

DA: 8 PA: 21 MOZ Rank: 32

The ERN-BOND network, coordinated by Rizzoli, presents in …

Source: Emilia-Romagna Region, EU delegation: Bruxelles premises. Attachments. Attachment. ERN-BOND White Paper_final.pdf. You might also be interested in. The Rizzoli Orthopaedic Institute in Argenta. The activity of the Rizzoli Orthopaedic and Rehabilitation Centre at Argenta Hospital has started. Read more . Rizzoli-Sicilia Department. Renewed for ten …

Ior.it

DA: 10 PA: 50 MOZ Rank: 46

Opportunities and Challenges for Machine Learning in Rare Diseases

Rare diseases (RDs) are complicated health conditions that are difficult to be managed at several levels. The scarcity of available data chiefly determines an intricate scenario even for experts and specialized clinicians, which in turn leads to the so called “diagnostic odyssey” for the patient. This situation calls for innovative solutions to support the decision …

Frontiersin.org

DA: 19 PA: 39 MOZ Rank: 63

The I-DSD Registry

Ern.eu or ernbond.eu. What is a Registry? A registry is similar to a medical database containing a range of medical records. Registries are used very often these days by doctors and scientists to perform research into rare conditions. By pooling knowledge and experiences, registries can improve our understanding of these conditions and improve the care of all those affected. …

Eurreca.files.wordpress.com

DA: 27 PA: 50 MOZ Rank: 87

Connecting with other organisations - MCDS Therapy

MCDS is a rare genetic skeletal disease. There are plenty of organisations and networks around the world who patients, families and doctors can get information and support from. There are no other organisations focused on MCDS but the list below features many which are specific to skeletal dysplasia or rare diseases. International Little People of […]

Mcds-therapy.eu

DA: 15 PA: 34 MOZ Rank: 56

Yleistietoa harvinaisista luustosairauksista | Genetiikan ja harvinais ...

European Reference Network on Rare Bone Disease (ernbond.eu) Päivitetty 5.5.2020 Kyllä . Mikä on Terveyskylä? Terveyskylä tarjoaa tietoa ja tukea kaikille, hoitoa potilaille ja työkaluja ammattilaisille. Julkisen verkkopalvelun sisällön ovat tuottaneet sosiaali- ja terveydenhuollon asiantuntijat yhdessä potilaiden ja asukkaiden kanssa. ...

Terveyskyla.fi

DA: 18 PA: 50 MOZ Rank: 42

Ernbond.eu" Keyword Found Websites Listing | Keyword Suggestions

Ernbond.eu DA: 10 PA: 16 MOZ Rank: 27 About ERN BOND ERN BOND brings together all rare diseases, essentially congenital, chronic and of genetic origin, that affect cartilage, bones and dentine; This considerable group of diseases present a significant variation in clinical outcomes and limited research program are currently available to clarify …

Keyword-suggest-tool.com

DA: 28 PA: 19 MOZ Rank: 56

ERN-BOND - OIFE - Osteogenesis Imperfecta Federation Europe

16/12/2021 By Ingunn Westerheim. On 1 January 2022, 620 new members will join the European Reference Networks, as unanimously approved by the ERN Board of Member States. As a result of the current call there will be nearly 1,500 ERN units in 27 Member States and Norway. The European Reference Network on Rare Bone Disorders (ERN BOND) suffered ...

Oife.org

DA: 8 PA: 14 MOZ Rank: 32

News from ERN-BOND - OIFE - Osteogenesis Imperfecta …

On the occasion of Rare Disease Day (February 28th) the European Reference Network for Rare Bone Disorders (ERN-BOND) organized a European Parliamentary Meeting called: European Reference Networks – Accelerating and Improving Diagnosis for Rare Diseases Patients. The meeting was kindly hosted by MEP Elena Gentile (S&D, IT) with support from …

Oife.org

DA: 8 PA: 31 MOZ Rank: 50

OUH deltager i European Reference Networks

OUH deltager i mange internationale projekter samt netværk. Nogle af disse er igangsat af EU Kommissionen og indgår i en samlet paraply af netværk, som går under navnet European Reference Networks (ERN). Hensigten med disse ERN netværk er at fremme drøftelser om komplekse og sjældne sygdomme og lidelser, der kræver højt specialiseret ...

Ouh.dk

DA: 6 PA: 50 MOZ Rank: 38

ERN BOND WG1 - Survey

the knowledge in limitations of genetic testing and variant interpretation. This Survey has been generated within WG1 Diagnostic Challenges of ERN BOND which is partially co-funded by the European Union. The development of this Survey started in 2019, therefore it has been decided to collect data also from Centre located in the United Kingdom.

Surveymonkey.com

DA: 20 PA: 22 MOZ Rank: 55

Мрежи - Europa

Мрежите. Кратка информация за мрежите ще намерите в информационните документи, които са достъпни на 23 езика на ЕС Търсене на налични преводи за тази връзка EN ••• и норвежки. Европейска ...

Ec.europa.eu

DA: 12 PA: 47 MOZ Rank: 73

ERN-BOND White Paper on Diagnosis of Osteogenesis Imperfecta …

ERNs provide key EU-added value for patients living with rare diseases in the EU, breaking down geographical barriers to diagnosis, treatment and care, and allowing knowledge to be shared across borders. ERNs also have the capacity to build a fuller picture of each rare disease, and in this respect I commend ERN-BOND’s initiative to conduct surveys into HCP’s knowledge and …

Oife.org

DA: 8 PA: 50 MOZ Rank: 81

ENDOCRINOLOGY IN THE TIME OF COVID-19 Management of …

European ournal of Endocrinology Clinical Practice Guidance N ittoes and others OD-1, calcium disorders 183:2 G59 and osteoporosis https://eje.bioscientifica.com identified vitamin D deficiency as a risk factor for ARDS and severity of ARDS (5), …

Eje.bioscientifica.com

DA: 22 PA: 47 MOZ Rank: 85

Register – Centrum für Seltene Erkrankungen Ruhr (CeSER)

To find out more about these networks please visit endoern.eu or ernbond.eu. What is a Registry? A registry is similar to a medical database containing a range of medical records. Registries are used very often these days by doctors and scientists to perform research into rare conditions. By pooling knowledge and experiences, registries can ...

Centrum-seltene-erkrankungen-ruhr.de

DA: 36 PA: 14 MOZ Rank: 67

Patients’ priorities and expectations on an EU registry for rare …

This survey of individuals, their family, guardians and carers has prioritised the key components for an EU-based rare bone and mineral condition research database. The survey highlights issues around collecting psychosocial impacts as well as measures of HCP trust. The survey demonstrated that using only specialist centre visits for data collection, while preferred …

Ojrd.biomedcentral.com

DA: 22 PA: 36 MOZ Rank: 76

Opportunities and Challenges for Machine Learning in Rare Diseases

Ernbond.eu/. This work was partially supported by grant from. Fondazione del Monte di Bologna e Ravenna for the project. Intelligenza artificiale e …

Researchgate.net

DA: 20 PA: 50 MOZ Rank: 31

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