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SMA Europe | Home
SMA Europe runs a call for research proposals aimed at finding therapies for SMA or at elucidating the basic pathophysiological processes of the disease. All together. One goal. Our members are national patient organisations led by people living with SMA and their families. Together, we are determined to make a positive difference to the lives ...
Sma-europe.euDA: 17 PA: 17 MOZ Rank: 18
SMA 2022 - Home
Welcome. SMA Europe takes great pride in inviting scientists and young researchers as well as clinicians and other health-care professionals from all over the world to attend the 3rd International Congress on Spinal Muscular Atrophy, from 9th to 11th of February 2022 in Barcelona, Spain. SMA Europe is the European umbrella for national SMA ...
Barcelona2022.sma-europe.euDA: 27 PA: 27 MOZ Rank: 29
International SMA Congress | European SMA Congress
It is with great pleasure that we welcome you to Krakow for our International Scientific Congress on spinal muscular atrophy lead by SMA Europe, which will take place from 25 to 27 January 2018 in Auditorium Maximum of the Jagiellonian University. Spinal muscular atrophy is experiencing exceptional times. Research has progressed significantly ...
Krakow2018.sma-europe.euDA: 24 PA: 24 MOZ Rank: 27
SMA 2022 - SMA Europe
SMA 2022 - SMA Europe. SMA Europe. SMA Europe is an umbrella organisation which unites 24 patient and research organisations focusing on spinal muscular atrophy (SMA) from 23 countries across Europe. The member organisations differ in terms of how long they have been established, in size and also in scope of activities. The representatives of ...
Barcelona2022.sma-europe.euDA: 27 PA: 32 MOZ Rank: 62
SMA 2022 - PROGRAMME
Local scientific/ clinical expert (Spain) 10:45 - 10.55. Opening of scientific & clinical programme - Brunhilde Wirth, Chair of SAB. 11.00 - 11:20. COFFEE - with patient organisation posters & SMA Europe stand. 11.20 - 12:50. Session 1 - Models, pathways and muscle regeneration. Chair: Cécile Martinat.
Barcelona2022.sma-europe.euDA: 27 PA: 33 MOZ Rank: 64
SMA Europe | Genetic and Rare Diseases Information Center …
Synonyms: SMA3, Muscular atrophy, juvenile, SMA 3, Kugelberg-Welander syndrome, KWS, Spinal muscular atrophy, mild childhood and adolescent form Spinal muscular atrophy type 4
Rarediseases.info.nih.govDA: 25 PA: 19 MOZ Rank: 49
SMA Europe | LinkedIn
SMA Europe | 765 followers on LinkedIn. Our final objective is to have a treatment for all people living with SMA in Europe | SMA Europe is an umbrella organisation, founded in 2006, which ...
Linkedin.comDA: 16 PA: 19 MOZ Rank: 41
Contact | European SMA Congress
SMA Europe Coordinator [email protected] With any queries related to the registration, accommodation and sponsorship please contact: Katarzyna Polakowska-Lys Logistics Organiser [email protected] Centrum Kongresowe Plus Sp. z o.o. ul. Tetmajera 35 /14 34-500 Zakopane NIP: 7252078896 . Honorary Patronage : Partner Scientific Partners Platinum Sponsors Silver …
Krakow2018.sma-europe.euDA: 24 PA: 8 MOZ Rank: 39
SMA Community Resources
VISITsma-europe.eu Patientenstimme SMA is (Self) Empowerment. In addition to various activities for patient involvement, there is news and information on the current development of research and treatment options, a FAQ oriented to current questions of affected persons and an overview for big and small events.
Care.togetherinsma.euDA: 21 PA: 50 MOZ Rank: 90
SMA Europe – EURACTIV.com
Access to SMA standards of care remains an open issue in Europe For people living with spinal muscular atrophy (SMA), access to suitable and effective treatment often depends on which EU country ...
Euractiv.comDA: 16 PA: 19 MOZ Rank: 44
SMA Europe e.V. | LobbyFacts Database
SMA Europe is an umbrella organisation which consists of 13 SMA patient and research organisations from 11 countries across Europe. It is staffed by one person. SMA Europe's aims are: 1. to improve the quality of life of individuals with Spinal Muscular Atrophy (SMA), 2. to promote the interests of SMA patients in European health policy; 3. to raise awareness of …
Lobbyfacts.euDA: 13 PA: 50 MOZ Rank: 86
SMA Solar Technology AG - Inverter & Photovoltaics solutions
2022-04-06. Intersolar 2022: SMA presents innovations for even more energy independence. 2022-04-05. The Sunny Tripower X from SMA combines solar power Generation and control. 2022-03-31. Business performance of SMA Solar Technology AG impaired by chip shortage and one-time item in 2021. 2022-03-23.
Sma.deDA: 10 PA: 8 MOZ Rank: 29
Organisers | European SMA Congress
More information can be found on www.sma-europe.eu Fundacja SMA. Fundacja SMA (SMA Foundation Poland) is a patient organisation that unites those affected by spinal muscular atrophy in Poland and beyond. It was set up in 2013 with the aims of providing support to SMA families, promoting standards of care and best practices, supporting the ...
Krakow2018.sma-europe.euDA: 24 PA: 11 MOZ Rank: 47
September 15 , 2021 Dear SMA Community,
Director Patient Advocacy SMA, Europe/Canada/Partner Markets, Biogen References: 1. Mercuri E. et al. SUNFISH Part 2: Efficacy and safety of risdiplam (RG7916) in patients with Type 2 or non-ambulant Type 3 spinal muscular atrophy (SMA). SMA Europe Feb 5-7, 2020 presentation. 2. Evrysdi US FDA Summary Basis of Approval (SBA) documents. Clinical …
Assets.sma-europe.euDA: 20 PA: 47 MOZ Rank: 80
Committee | European SMA Congress
Vanessa Christie-Brown. Vanessa was a research scientist, working in the field of immunology, initially at The Royal Postgraduate Medical School (Hammersmith Hospital) and later at Imperial College. She joined The SMA Trust in the UK in January 2011 as Research Co-ordinator and SMA Europe as Coordinator in May 2014.
Krakow2018.sma-europe.euDA: 24 PA: 10 MOZ Rank: 48
SMA Europe 2020 - Roche Medically Home
Spinal Muscular Atrophy. Autism Spectrum Disorder. Parkinson's Disease. Acute Ischemic Stroke. Duchenne Muscular Dystrophy ... Home Neuroscience SMA Europe 2020. Roche and Genentech at. SMA Europe 2020. February 05 - February 07 Evry, France sma-europe.eu. Add to calendar. Share feedback. Share page - Medical Materials Coming soon
Medically.roche.comDA: 19 PA: 50 MOZ Rank: 89
SMA Europe 2020
Spinal Muscular Atrophy. Autism Spectrum Disorder. Parkinson's Disease. Acute Ischemic Stroke. Duchenne Muscular Dystrophy ... Home Neuroscience SMA Europe 2020. Roche and Genentech at. SMA Europe 2020. February 05 - February 07 Evry, France sma-europe.eu. Add to calendar. Share feedback. Share page - Medical Materials Coming soon
Medically.roche.comDA: 19 PA: 50 MOZ Rank: 86
Accommodation | European SMA Congress
International Scientific Congress on Spinal Muscular Atrophy, Kraków, Poland 27–29 January 2018. Registration. Home Programme Gallery Committee Sponsors Organisers Venue Krakow Accommodation Registration Contact. Accommodation. There are countless hotels and guest houses in and around Krakow Old Town, ranging from backpackers hostels to truly exclusive …
Krakow2018.sma-europe.euDA: 24 PA: 14 MOZ Rank: 55
International Scienti c Congress - SMA Europe
Www.krakow2018.sma-europe.eu. Accommodation There are countless hotels a nd guest houses in and around Krakow Old Town, ranging from backpackers hostels to truły exclusive hotels with only a h andful of suites serviced to the highest standard For the purpose of the SMA Congress, we are listing three business hotels located in close vicinity of the Auditorium …
Krakow2018.sma-europe.euDA: 24 PA: 50 MOZ Rank: 93
SMA Europe Code of Practice on Relationships with the …
C. SMA Europe will refrain from contributing to industry websites. d. SMA Europe will refuse to be quoted in industry press releases that relate to a marketed product or a product under development e. If SMA Europe feels the need to communicate to the media about a product/service, it will issue its own press release which is clearly independent of
Assets.sma-europe.euDA: 20 PA: 50 MOZ Rank: 31
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