Rare-x.org

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nord, a 501(c)(3) organization, is the leading patient advocacy organization dedicated to improving the lives of individuals and families living with rare diseases.

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Host name	192.0.78.173
IP address	192.0.78.173
Location	San Francisco United States
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Longitude	-122.4121
Metro Code	807
Timezone	America/Los_Angeles
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We found Websites Listing below when search with rare-x.org on Search Engine

RARE-X – RARE-X Disorder

The RARE-X Data Collection Program uses a collaborative technology platform powered by RARE-X. RARE-X is a program of the nonprofit Global Genes created to accelerate rare …

1patient.rare-x.org

DA: 19 PA: 19 MOZ Rank: 20

NARS1 - RARE-X

The NARS1 Data Collection Program uses a collaborative technology platform powered by RARE-X. RARE-X is a nonprofit created to accelerate rare disease research, …

Nars1.rare-x.org

DA: 16 PA: 16 MOZ Rank: 18

draftpage – Just another RARE-X Community Sites site

The N-of-1 Data Collection Program uses a collaborative technology platform powered by RARE-X. RARE-X is a nonprofit created to accelerate rare disease research, …

Draftpage.rare-x.org

DA: 20 PA: 20 MOZ Rank: 23

Exchange Forum – RARE-X

RARE-X Exchange – Built to Accelerate – disease characterization, progression models and research roadmapping. RARE-X hosted its inaugural Exchange Forum in San Diego, …

Rare-x.org

DA: 10 PA: 22 MOZ Rank: 35

Director, Community Engagement, RARE-X - Global Genes

RARE-X is a research program of Global Genes, a non-profit 501c3 organization, whose mission is to support next generation advocacy by providing patient advocates with a …

Globalgenes.org

DA: 15 PA: 38 MOZ Rank: 57

RARE-X Releases New Report that Uncovers Large Number of …

Jun 7, 2022 Washington, DC June 7, 2022 – RARE-X, a nonprofit organization dedicated to enabling patient communities to easily collect, manage, connect, and share their de …

Rare-x.org

DA: 10 PA: 50 MOZ Rank: 45

RARE-X — STXBP1 Foundation

RARE-X is a 501(c)(3) nonprofit created by leaders in the fields of patient advocacy, medical research, biopharma, and technology. RARE- X is collaborating with rare disease …

Stxbp1disorders.org

DA: 23 PA: 7 MOZ Rank: 36

Corporate Advisory Council (CAC) – RARE-X

RARE-X Mission. RARE-X is a 501(c)(3) patient advocacy organization, which believes that by enabling the gathering, structuring, and sharing of critical patient data at scale, and …

Rare-x.org

DA: 10 PA: 28 MOZ Rank: 45

RARE-X and the Broad Institute of MIT and Harvard Partner to …

May 11, 2021 RARE-X is a 501(c)(3) patient advocacy organization focused on supporting the acceleration and development of life-altering treatments and future cures for patients …

Rare-x.org

DA: 10 PA: 50 MOZ Rank: 42

Global Genes’ RARE-X Issues Open Call to Researchers to

May 31, 2023 Using a collaborative approach that involves biopharma, researchers and advocates with data as a central core, Global Genes also enables research and data …

Prweb.com

DA: 13 PA: 50 MOZ Rank: 41

NUROSENE ANNOUNCES ADVISORY ROLE WITH RARE-X

Jan 18, 2023 RARE-X is a program of Global Genes focused on supporting the acceleration and development of life-altering treatments and future cures for patients …

Newswire.ca

DA: 15 PA: 50 MOZ Rank: 99

The Power of Being Counted – RARE-X

The Power of Being Counted Report uncovers rare diseases that were previously uncounted, unrecognized, and therefore, below the radar of clinical research teams …

Rare-x.org

DA: 10 PA: 41 MOZ Rank: 62

RARE-X | LinkedIn

RARE-X | 4,393 followers on LinkedIn. Enabling critical patient-owned data to accelerate rare disease diagnosis, disease understanding and future cures | Removing barriers to …

Linkedin.com

DA: 16 PA: 15 MOZ Rank: 43

LOOX RARE (@LooxRare) | Twitter

Nov 21, 2021 The latest Tweets from LOOX RARE (@LooxRare). For the JPEG collectors // Rep the X

Twitter.com

DA: 11 PA: 9 MOZ Rank: 33

Scientists find treatment for rare genetic skin disorder - Medical …

May 31, 2023 Scientists find treatment for rare genetic skin disorder. Fibroblasts, shown in green, are cells that connect tissues and organs in the body and play an important role in …

Medicalxpress.com

DA: 17 PA: 50 MOZ Rank: 88

Mountaineer climbs rare Everest 'triple crown' | CNN

May 26, 2023 A renowned U.S. mountain guide has achieved the rare Mount Everest region “triple crown” of climbing the Everest, Lhotse and Nuptse peaks in one season, a …

Cnn.com

DA: 11 PA: 50 MOZ Rank: 35

2023 Hangtown Classic - 250 Motocross Results - Racer X

Jun 3, 2023 2023 Hangtown Classic 250 AMA Pro Motocross Championship Results

Racerxonline.com

DA: 16 PA: 44 MOZ Rank: 76

New strategy can harvest chemical information on rare isotopes …

11 hours ago This photograph is a rare example of a curium compound (isotopes Cm-248/246). This is a Cm(III)-polyoxometalate complex isolated and characterized using …

Phys.org

DA: 8 PA: 50 MOZ Rank: 83

2023 Hangtown Motocross Classic Injury Report - Racer X

Jun 1, 2023 Hunter Lawrence – Ribs | In. Lawrence had a big crash during the week before the opener and tore “all the fascia and cartilage off” his rib. He ended up winning the …

Racerxonline.com

DA: 16 PA: 34 MOZ Rank: 68

Watch ex-boxing world champion land insanely rare KO while …

Jun 4, 2023 EX-BOXING champion Krzysztof Glowacki scored a stunning knockout from his BACK to win his MMA debut. Glowacki formerly held the WBO cruiserweight title and …

Thesun.co.uk

DA: 16 PA: 45 MOZ Rank: 80

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