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| Host name | www9sni.world4you.com |
| IP address | 81.19.159.9 |
| Location | Austria |
| Latitude | 48.2 |
| Longitude | 16.3667 |
| Timezone | Europe/Vienna |
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Site Inspections
Websites Listing
We found Websites Listing below when search with nf-patients.eu on Search Engine
What is NF? – NF Patients United
– NF Patients United What is NF? Neurofibromatosis is a rare genetic disease, that includes three different diseases that affect over 200,000 people in Europe. All are genetic diseases that can cause the growth of tumors on the nerves anywhere in the body, with severe consequences.
Nf-patients.euDA: 18 PA: 12 MOZ Rank: 30
Revised diagnostic criteria for NF1 and Legius syndrome - nf-patients.eu
On 19 May 2021, revised diagnostic criteria for neurofibromatosis type 1, Legius syndrome, and mosaic NF were released. This is the first revision of these criteria since they were first announced in 1987 at the National Institutes of Health (NIH) Consensus Development Conference on Neurofibromatosis, The idea of such revision is to incorporate ...
Nf-patients.euDA: 18 PA: 29 MOZ Rank: 48
Research on NF – NF Patients United
Highly respected experts in the field of NF show actual research for NF Patients. Watch their presentations here: NF1 Tumor Surveillance by Eric Legius. Eric Legius from the Centre for Human Genetics at the University of Leuven (Belgium) presents the new Guidelines for NF1 Tumor Surveillance in the NFPU Best practice 2021. These guidelines comprise …
Nf-patients.euDA: 18 PA: 10 MOZ Rank: 30
NF Patients Academy – Survey – NF Patients United
For the "NF Young Patient Academy 2020" these dates fit for me: * 24th Aug. - 28th Aug. 31th Aug. - 4th Sept. 7th Sept. - 11th Sept. 14th Sept. - 18.
Nf-patients.euDA: 18 PA: 20 MOZ Rank: 41
NF Ambassador – NF Patients United
NF Ambassador. NF Patients Academy 2022. . NF Ambassador. NF International Summit. 2022-03-25 — 0 Comments. NF Ambassador. This April, come meet the world from your living room. 2021-03-17. NF Ambassador. Young NF …
Nf-patients.euDA: 18 PA: 24 MOZ Rank: 46
nf1 – NF Patients United
Meeting, NF community. Invitation to the NFPU annual meeting & best practice 2021. 2021-10-28. Meeting. NFPU Best Practice & Annual Meeting. 2020-11-25. Research. Research update #1 2020 – NIH’s findings on Selumetinib. 2020-03-21. Meeting. The next decade for NF Patients in Europe. 2020-01-07. Research. Science and research update #2 2019 ...
Nf-patients.euDA: 18 PA: 9 MOZ Rank: 32
research – NF Patients United
NF Patients Academy 2022; Contact; Tag: research. Page 1 / 1. Research. Research update #1 2020 – NIH’s findings on Selumetinib. 2020-03-21. Research. Science and research update #2 2019. 2019-08-10. English. Bulgarian Catalan Croatian Czech Danish Dutch English Finnish French German Greek Hungarian Italian Norwegian Polish Portuguese Romanian Russian …
Nf-patients.euDA: 18 PA: 14 MOZ Rank: 38
NF Patients United - Home - Facebook
See more of NF Patients United on Facebook. Log In. Forgot account? or. Create new account. Not now. Community See All. 765 people like this. 853 people follow this. 2 check-ins. About See All. Contact NF Patients United on Messenger. www.nf-patients.eu. Nonprofit Organization. Impressum. Page transparency See more. Facebook is showing information to help you …
Facebook.comDA: 16 PA: 18 MOZ Rank: 41
NF Patients United (NFPU) | LobbyFacts Database
NF Patients United is an international umbrella organization of non profit patient organizations that advocate for people affected by Neurofibromatosis (Neurofibromatosis Type 1, Neurofibromatosis Type 2 and Schwannomatosis) and their families. We aim to improve the quality of life of NF patients by: - raising awareness - providing access to information - …
Lobbyfacts.euDA: 13 PA: 50 MOZ Rank: 88
ependymoma – NF Patients United
NF Patients United. Mission and Goals; Projects; NF Research; Support. Donate; Membership; Activities. Sharing best practices; NF Patients Academy 2022; Contact; Tag: ependymoma. Page 1 / 1. NF community, Research. Children’s Tumor Foundation announces the launch of NF2 trial. 2020-05-11. English. Bulgarian Catalan Croatian Czech Danish Dutch English Finnish French …
Nf-patients.euDA: 18 PA: 16 MOZ Rank: 43
Privacy Policy – NF Patients United
It is important to us to protect your personal data sufficiently. We therefore observe the applicable legal European and Austrian provisions, in particular the Basic Data Protection Regulation (…
Nf-patients.euDA: 18 PA: 27 MOZ Rank: 55
As announced NF Patients United will... - NF Patients United
As announced NF Patients United will hold its Annual Meeting 2020 on Friday 18th and Saturday 19th December. There we will give a brief introduction about NFPU - the European NF patient...
Facebook.comDA: 16 PA: 14 MOZ Rank: 41
NF Patients United - Posts | Facebook
NF Patients United, Wien. 765 likes · 7 talking about this. NF Patients United is an umbrella organizations for patient organizations all over Europe...
Facebook.comDA: 16 PA: 50 MOZ Rank: 90
NF Patients United on Twitter: "The registration for NFPU best …
The registration for NFPU best practice 2021 on Nov.6th & 7th, 2021 is open: https://www.nf-patients.eu/nfbestpractice2021/ We welcome all NF patients, patient ...
Twitter.comDA: 11 PA: 38 MOZ Rank: 62
NF Patients United - Posts | Facebook
NF Patients United, Wien. 701 likes. NF Patients United is an umbrella organizations for patient organizations all over Europe combining their efforts to fight against Neurofibromatosis.
Facebook.comDA: 16 PA: 42 MOZ Rank: 72
NF Registry - CTF Patient Portal
Welcome to the NF REGISTRY, the patient-driven resource for accelerating research and finding treatments for all forms of neurofibromatosis (NF). Sponsored by the Children’s Tumor Foundation ( www.ctf.org) and the Children’s Tumor Foundation Europe ( www.ctfeurope.org ), the NF Registry is a safe and effective tool to empower NF patients ...
Nfregistry.orgDA: 18 PA: 13 MOZ Rank: 46
NF Patient Survey - Neurofibromatosis Northeast
You may forward the survey link to other NF patients, families or friends within the New England and New York area. CLICK HERE TO TAKE THE SURVEY. THANK YOU! Connect With Us. Friends of NF Northeast. Upcoming Events . Steps2Cure NF Walk – Western NY on June 4, 2022 12:00 PM Falmouth Road Race – Team NF ...
Nfnortheast.orgDA: 15 PA: 25 MOZ Rank: 56
Identifying challenges in neurofibromatosis: a modified Delphi ...
Neurofibromatosis type 1 (NF1), neurofibromatosis type 2 (NF2) and schwannomatosis (SWN) are genetic disorders that predispose to the development of nerve sheath tumours [1, 2]. These tumours are ...
Nature.comDA: 14 PA: 28 MOZ Rank: 59
NF Registry Welcomes European Patients | Children's Tumor …
Helping NF researchers learn about NF from the patient perspective, through the availability of anonymised information from patients around the world. Learn more, and join the confidential NF Registry by clicking here. Back to Blog. Children's Tumor Foundation. Avenue Lloyd George 7 1000 Brussels, Belgium EU Transparency Register No: 364424439411-39: Belgium: …
Ctfeurope.orgDA: 13 PA: 50 MOZ Rank: 83
NF Patients United - Posts | Facebook
NF Patients United, Wien. 725 likes · 44 talking about this. NF Patients United is an umbrella organizations for patient organizations all over Europe combining their efforts to fight against...
Business.facebook.comDA: 21 PA: 24 MOZ Rank: 64
Domains Expiration Date Updated
| Site | Provider | Expiration Date |
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| overseas-traveler.com | gmo.jp | 333 Days |
| readytopotty.com | godaddy.com | 4 Years, 303 Days |
| hnningyang.com | gname.com | 305 Days |