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Domain Informations

Mpsviiinfocus.com lookup results from whois.cloudflare.com server:
  • Domain created: 2015-07-17T22:29:24Z
  • Domain updated: 2021-08-19T02:49:58Z
  • Domain expires: 2027-07-27T11:59:59Z 3 Years, 37 Days left
  • Website age: 8 Years, 337 Days
  • Registrar Domain ID: 1947579431_DOMAIN_COM-VRSN
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  • inetnum : 104.16.0.0 - 104.31.255.255
  • name : CLOUDFLARENET
  • handle : NET-104-16-0-0-1
  • status : Direct Allocation
  • created : 2010-07-09
  • changed : 2021-07-01
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Host Informations
Host name104.18.8.194
IP address104.18.8.194
Location United States
Latitude37.751
Longitude-97.822
TimezoneAmerica/Chicago
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Port Scanner (IP: 104.18.8.194)
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 › Pop3: 110
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 › Microsoft RPC services: 135
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MPS VII - Genetic and Rare Disease | For Patients

MPS VII is a rare genetic disease Fewer than 1 in 1,000,000 people have MPS VII. MPS VII is inherited and in an autosomal recessive manner Inherited means the mutated gene that causes the enzyme deficiency, called the GUSB (β-glucuronidase) gene, is passed down from parent to child. Autosomal recessive describes the way the genes are passed down.

Mpsviiinfocus.com

DA: 21 PA: 14 MOZ Rank: 35

mpsviiinfocus.com (MPS 7 - Mucopolysaccharidosis VII | MPS VII In …

Mpsviiinfocus.com (hosted on cloudflare.com) details, including IP, backlinks, redirect information, and reverse IP shared hosting data

Host.io

DA: 7 PA: 18 MOZ Rank: 26

mpsviiinfocus.com MPS 7 - Mucopolysaccharidosis VII | MPS VII In …

Mpsviiinfocus.com registered under .COM top-level domain. Check other websites in .COM zone. The last verification results, performed on (February 27, 2022) mpsviiinfocus.com show that mpsviiinfocus.com has a valid and up-to-date SSL certificate issued by CloudFlare, Inc. expiring on April 08, 2022.

Webrate.org

DA: 11 PA: 34 MOZ Rank: 47

Mucopolysaccharidose Typ VII – Vestronidase alfa - Ultragenyx

MPS VII verursacht oft eine charakteristische Physiognomie und kann progressive Skelettdysplasie auslösen sowie zu Kleinwuchs, Kyphose und Gelenksteifigkeit führen. Weitere mögliche Symptome der MPS VII sind Katarakte, Hornhauteintrübungen, Hernien und nachlassendes Hörvermögen. In schwereren Fällen können auch Entwicklungsverzögerungen …

Ultragenyx.de

DA: 13 PA: 23 MOZ Rank: 39

Avada best WordPress theme by ThemeFusion - mpsviiinfocus.com

Avada best WordPress theme - WordPress site: mpsviiinfocus.com. Last updated Mar 2022. MPS 7 - Mucopolysaccharidosis VII | MPS VII In Focus. Detected WordPress Themes (2x) More Info / Download Theme. Theme Name: Avada: Author: ThemeFusion: Theme Used on: 341 201 websites: Theme Folder: avada: Last Version:

Themesinfo.com

DA: 14 PA: 48 MOZ Rank: 66

104.18.8.194 IP Address Details - IPinfo.io

Full IP address details for 104.18.8.194 (AS13335 Cloudflare, Inc.) including geolocation and map, hostname, and API details.

Ipinfo.io

DA: 9 PA: 13 MOZ Rank: 27

Lessons Learned from MEPSEVII: Enzyme Replacement Therapy for …

Sly Disease/MPS VII 1. Short stature 2. “Coarse” facial features 3. Enlarged tonsils and adenoids 4. Hepatosplenomegaly 5. Umbilical or inguinal hernias 6. Pain due to bone and joint stiffness and carpel tunnel syndrome 7. Cardiomyopathy/valve dysfunction 8. Respiratory complications 9. Corneal clouding and cataracts in the eyes 10.

Forumresearch.org

DA: 17 PA: 43 MOZ Rank: 66

Pathway to diagnosis and burden of illness in …

Mucopolysaccharidosis type VII (Sly disease, MPS VII), is an ultra-rare, multi-symptom disease with variable clinical presentations which can present challenges with diagnosis, management and care. We believe this survey is the first to explore the patient experience through direct questioning of the caregivers of 13 individuals with MPS VII.

Ncbi.nlm.nih.gov

DA: 20 PA: 25 MOZ Rank: 52

Pathway to diagnosis and burden of illness in ... - Europe PMC

Mucopolysaccharidosis type VII (Sly disease, MPS VII), is an ultra-rare, multi-symptom disease with variable clinical presentations which can present challenges with diagnosis, management and care. We believe this survey is the first to explore the patient experience through direct questioning of the caregivers of 13 individuals with MPS VII.

Europepmc.org

DA: 13 PA: 21 MOZ Rank: 42

FAMILIA MPS ESPANOL

La mucopolisacaridosis de tipo VII (MPS VII), también conocida como síndrome de Sly, es una enfermedad metabólica genética producida por una deficiencia de la enzima lisosomal

Facebook.com

DA: 16 PA: 50 MOZ Rank: 76

(PDF) Pathway to diagnosis and burden of illness in ...

Background Mucopolysaccharidosis type VII (Sly disease, MPS VII), is an ultra-rare, multi-symptom disease with variable clinical presentations which can present challenges with diagnosis, management and care. We believe this survey is the first to

Academia.edu

DA: 16 PA: 50 MOZ Rank: 40

2606:4700::6812:8c2 IP Address Details - IPinfo.io

Full IP address details for 2606:4700::6812:8c2 (AS13335 Cloudflare, Inc.) including geolocation and map, hostname, and API details.

Ipinfo.io

DA: 9 PA: 20 MOZ Rank: 40

Pathway to diagnosis and burden of illness in …

Mucopolysaccharidosis type VII (Sly disease, MPS VII), is an ultra-rare, multi-symptom disease with variable clinical presentations which can present challenges with diagnosis, management and care. We believe this survey is the first to explore the patient experience through direct questioning of the caregivers of 13 individuals with MPS VII.

Ojrd.biomedcentral.com

DA: 22 PA: 35 MOZ Rank: 69

Sly syndrome - Summarized by Plex.page | Content | Summarization

Mucopolysaccharidosis type VII, additionally recognized as Sly Syndrome, is an unusual, progressive lysosomal storage space illness first described in 1973 by Dr. William Sly.

Plex.page

DA: 9 PA: 13 MOZ Rank: 35

msmedicine.com Webrate website statistics and online tools

Msmedicine.com belongs to GOOGLE - Google LLC, US. Check the list of other websites hosted by GOOGLE - Google LLC, US.. Msmedicine.com registered under .COM top-level domain. Check other websites in .COM zone.. The last verification results, performed on (March 18, 2022) msmedicine.com show that msmedicine.com has an invalid SSL certificate.

Webrate.org

DA: 11 PA: 31 MOZ Rank: 56

Pathway to diagnosis and burden of illness in …

Mucopolysaccharidosis type VII (Sly disease, MPS VII), is an ultra-rare autosomal recessive, lysosomal storage disorder caused by deficiency of the enzyme β-glucuronidase ( GUSB ). First described by Sly et al. in 1973, the absence of GUSB activity …

Springermedizin.de

DA: 22 PA: 50 MOZ Rank: 35

ljsfilm.com Technology Profile

Web technologies ljsfilm.com is using on their website. ASP.NET. ASP.NET Usage Statistics · Download List of All Websites using ASP.NET. ASP.NET is a web application framework marketed by Microsoft that programmers can use to build dynamic web sites, web applications and XML web services.

Builtwith.com

DA: 13 PA: 12 MOZ Rank: 41

La... - MPS - Mucopolisacaridosis y Síndromes Relacionados

La MPS VII es uno de los tipos más raros de mucopolisacaridosis. La mucopolisacaridosis de tipo VII (MPS VII), también conocida como síndrome de …

Facebook.com

DA: 16 PA: 39 MOZ Rank: 72

gambleguardian.com — all website/company info

All website/company info: gambleguardian.com Kasiinomängud | tasuta kasiinomängud ja palju muud

Tapki.com

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