Aldconnect.org

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Email address with aldconnect.org

Found 1 emails of this domain
1. [email protected]

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Domain Backlinks	820
Rank	0.9M
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Costs	2.9K USD

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We found Websites Listing below when search with aldconnect.org on Search Engine

About Us – ALD Connect

ALD Connect is committed to the principles of open scientific communication, peer review, full and open disclosure of potential conflicts of interest, and democratic governance of its organization and activities. Call Us. (833) 525 …

Aldconnect.org

DA: 14 PA: 10 MOZ Rank: 24

Clinical Trials and Research – ALD Connect

Research helps us learn more about adrenoleukodystrophy and determine whether new treatments are safe and effective.

Aldconnect.org

DA: 14 PA: 10 MOZ Rank: 25

Symptomatic Women – ALD Connect

Symptomatic Women. Women with ALD can experience mild to severe symptoms. Symptoms vary in women, but many times include bowel and bladder dysfunction, pain in the extremities, and walking difficulties. Cerebral disease …

Aldconnect.org

DA: 14 PA: 7 MOZ Rank: 23

Upcoming Events – ALD Connect

Llamada comunitaria en español. ¡Únase a nosotros para una llamada comunitaria ALD en español! Esta convocatoria es un proyecto conjunto entre la Fundación Lautaro te Necesita y …

Aldconnect.org

DA: 14 PA: 10 MOZ Rank: 27

ALDconnect - You are Not Alone | Powerful Patient

Podcast: Play in new window | Download (Duration: 44:57 — 10.3MB) Kathleen O’Sullivan-Fortin shares her story with Joyce and Robin. Following her son’s diagnosis with X …

Powerfulpatient.org

DA: 19 PA: 12 MOZ Rank: 35

What is ALD? – ALD Connect

What are the symptoms of ALD? How does it progress? ALD symptoms can vary depending on age, gender, and the body tissues affected. The tissues that are most severely affected in ALD …

Aldconnect.org

DA: 14 PA: 13 MOZ Rank: 32

Community Calls – ALD Connect

Whether it’s newborn screening parents, men with AMN, or symptomatic women with ALD, our Community Calls are continuing to bring support and deepen our community’s connections with each other. You can register for a Community …

Aldconnect.org

DA: 14 PA: 17 MOZ Rank: 37

@aldconnect is on Instagram • 802 people follow their account

ALD Connect. Nonprofit organization. Consortium of advocates and experts advancing care for #adrenoleukodystrophy ( #ALD) & #adrenomyeloneuropathy ( #AMN) through research. …

Instagram.com

DA: 17 PA: 12 MOZ Rank: 36

X out ALD - Home

Our Mission. X out ALD is a 501 (c) (3) organization dedicated to increasing awareness of adrenoleukodystrophy and supporting research of the disease at the University of Minnesota …

Xoutald.org

DA: 11 PA: 11 MOZ Rank: 20

ALD Connect - Facebook

ALD Connect, Middleton, Massachusetts. 7,786 likes · 77 talking about this · 11 were here. An innovative network designed to empower and engage patients and clinical investigators in a …

Facebook.com

DA: 16 PA: 11 MOZ Rank: 36

ALD Connect - NORD (National Organization for Rare Disorders)

Address 35 Village Road Suite 100 #353306 Middleton, MA 01949 USA Email Address [email protected] Website https://aldconnect.org/ Description Our mission is to improve …

Rarediseases.org

DA: 16 PA: 27 MOZ Rank: 53

ALD Connect | LinkedIn

ALD Connect | 120 followers on LinkedIn. Improving outcomes for adrenoleukodystrophy (ALD) patients by empowering families and advancing new clinical care | We are an international, independent, non-profit group of ALD patients, patient advocates, and researchers, who collaboratively educate, advocate, and conduct clinical research among the men, women, and …

Ir.linkedin.com

DA: 15 PA: 20 MOZ Rank: 46

ALDConnect (@ALDConnect) Twitter Tweets • TwiDoom

Tweets and Medias ALDConnect Twitter ( ALDConnect ) Consortium of advocates and experts advancing care for #adrenoleukodystrophy (#ALD) and #adrenomyeloneuropathy (#AMN) …

Twidoom.com

DA: 11 PA: 12 MOZ Rank: 35

aldconnect - Instagram

We welcome your feedback and suggestions to help make this another successful meeting. Please reach out to [email protected] with any suggested topics or questions for our experts. The link to register is in our bio. #leukodystrophyawareness #adrenoleukodystrophy #ald #adrenomyeloneuropathy #amn #newbornscreening #nbs #womenwithald

Instagram.com

DA: 17 PA: 15 MOZ Rank: 45

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