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Domain Informations
Network
- inetnum : 69.174.82.0 - 69.174.83.255
- name : MZIMA08-CUST-WIREDFORCHANGE01
- handle : NET-69-174-82-0-1
- status : Reallocated
- created : 2009-07-30
- changed : 2011-09-24
Owner
- organization : Wired For Change, Inc.
- handle : WIRED-15
- address : Array,Washington,DC,20009,US
Technical support
- handle : ATO44-ARIN
- name : Tomasello, Andy
- phone : +1-202-558-2807
- email : [email protected]
Abuse
- handle : ATO44-ARIN
- name : Tomasello, Andy
- phone : +1-202-558-2807
- email : [email protected]
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Host Informations
| Host name | hfh.salsalabs.com |
| IP address | 69.174.83.220 |
| Location | United States |
| Latitude | 37.751 |
| Longitude | -97.822 |
| Timezone | America/Chicago |
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We found Websites Listing below when search with action.everylifefoundation.org on Search Engine
EveryLife Foundation for Rare Diseases
The EveryLife Foundation for Rare Diseases is a 501(c)(3) nonprofit, nonpartisan organization dedicated to empowering the rare disease patient community to advocate for impactful, science-driven legislation and policy that …
Everylifefoundation.orgDA: 23 PA: 23 MOZ Rank: 24
COVID-19 Action Center - EveryLife Foundation for Rare …
the everylife foundation joined the alliance for aging research (alliance) and 78 other national organizations representing patients, …
Everylifefoundation.orgDA: 23 PA: 9 MOZ Rank: 33
Contact Us - EveryLife Foundation for Rare Diseases
EveryLife Foundation for Rare Diseases. 1012 14th Street, NW, Suite 500. Washington, DC 20005. phone 202-697-RARE (7273) Patients or patient organizations: Lindsey at …
Everylifefoundation.orgDA: 23 PA: 12 MOZ Rank: 37
About Us - EveryLife Foundation for Rare Diseases
The EveryLife Foundation for Rare Diseases is a 501 (c) (3) nonprofit, nonpartisan organization dedicated to empowering the rare disease patient …
Everylifefoundation.orgDA: 23 PA: 10 MOZ Rank: 36
EveryLife Relaunches Newborn Screening Action Center
The EveryLife Foundation for Rare Diseases kicked off Newborn Screening Awareness Month with the launch of its newly updated Newborn Screening Action Center, a …
Everylifefoundation.orgDA: 23 PA: 50 MOZ Rank: 81
Newborn Screening Bootcamp - EveryLife Foundation for Rare …
Since 2019, the EveryLife Foundation for Rare Diseases and Expecting Health have co-hosted the Newborn Screening Bootcamp. The event is designed to educate and engage participants …
Everylifefoundation.orgDA: 23 PA: 50 MOZ Rank: 86
EveryLife Foundation Shares Updates on Congressional Actions
Since Congress has returned from its July 4th recess, there has been a flurry of activity on rare disease-related policy issues. We want to update you on important …
Everylifefoundation.orgDA: 23 PA: 50 MOZ Rank: 44
Rare Disease Legislative Advocates - EveryLife Foundation for Rare Diseases
Rare Disease Legislative Advocates (RDLA) is a program of the EveryLife Foundation for Rare Diseases designed to support the advocacy of all rare disease patients and organizations. RDLA believes that every voice matters and that patients are the …
Everylifefoundation.orgDA: 23 PA: 16 MOZ Rank: 46
Practice Your Pitch with the Fast Forward for RARE Webinar
Practice Your Pitch with the Fast Forward for RARE Webinar ... Loading.... ...
Everylifefoundation.salsalabs.orgDA: 33 PA: 20 MOZ Rank: 61
July Rare Report - Salsa Labs
Please visit the Foundation’s Newborn Screening Action Center to learn more and to make your voice heard. EveryLife Foundation 2020 Annual Report In 2020, COVID-19 brought the world …
Everylifefoundation.salsalabs.orgDA: 33 PA: 20 MOZ Rank: 62
Advocate for Patients | MGFA - Myasthenia Gravis
The Every Life foundation has a clickable link to help you take action and contact your political leaders: Take Action | EveryLife Foundation for Rare Diseases MGFA Signs Letter to …
Myasthenia.orgDA: 14 PA: 37 MOZ Rank: 61
EveryLife Foundation for Rare Diseases - MG United
EveryLife Foundation for Rare Diseases is dedicated to empowering the rare disease patient community to advocate for impactful, science-driven legislation and policy that advances the …
Mg-united.comDA: 17 PA: 50 MOZ Rank: 86
Friedriech's Ataxia Research Alliance - Advocacy
Take Action. Advocacy Partnerships ! SHARE Archived in Scientific News 2022 (77) June (9) • Friedreich ataxia: clinical f… • Premature transcription termi… • Metal Ion …
Curefa.orgDA: 14 PA: 25 MOZ Rank: 51
Join us for a virtual RDLA Meet and Greet Session!
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Everylifefoundation.salsalabs.orgDA: 33 PA: 39 MOZ Rank: 85
Everylife Foundation Newborn Screening - Mito Action
ENERGY IN ACTION – EPISODE 041 EveryLife Foundation Newborn Screening The EveryLife Foundation is dedicated to empowering the rare disease patient community to advocate for …
Mitoaction.orgDA: 18 PA: 50 MOZ Rank: 82
The Power of Being Counted - RARE-X
The multi-year diagnostic odyssey experienced by many rare disease patients imposes a significant psychological, physical, and socioeconomic burden that affects patients and their …
Rare-x.orgDA: 10 PA: 41 MOZ Rank: 66
Overview of the EveryLife Foundation for Rare Diseases
Newsletters, action alerts and event invitations. • Like us on Facebook as both the EveryLife Foundation for Rare Diseases and Rare Disease Legislative Advocates. • Follow us on Twitter …
Rareadvocates.orgDA: 17 PA: 50 MOZ Rank: 34
Energy In Action Podcast - Mito Action
Energy in Action Podcast. Our podcast series, Energy In Action consists of conversations with patients, families, researchers and thought leaders in the mitochondrial disease communities. …
Mitoaction.orgDA: 18 PA: 18 MOZ Rank: 53
February Rare Report - Salsa Labs
Take Action: Please ask your representatives to support this legislation. Patient Organizations: Please join our sign-on letter. ... EveryLife Foundation Welcomes New Board Member The …
Everylifefoundation.salsalabs.orgDA: 33 PA: 30 MOZ Rank: 81
EveryLife Foundation for Rare Diseases - Idealist
The EveryLife Foundation is dedicated to accelerating biotech innovation for rare disease treatments through science-driven public policy. We see our Foundation as an agent for …
Idealist.orgDA: 16 PA: 50 MOZ Rank: 31
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